what we do
Awareness & Education
Janiyah’s Love Sickle Cell Foundation is dedicated to enhancing awareness and education initiatives about sickle cell disease through community-based education. We provide school presentations to help students learn about sickle cell and foster empathy for those affected. Additionally, we create and distribute informative brochures and pamphlets to raise awareness among the general public.
Each year, we organize our Annual Sickle Cell Walk — a significant community event held in September during Sickle Cell Awareness Month. This walk unites families, survivors, and supporters to honor those living with the disease and remember those we’ve lost. It serves as a powerful platform for community partnerships advocacy, while also promoting our health and wellness programs, making it a meaningful way to spread awareness and strengthen our community with purpose.
Health & Wellness Programs
Health is at the heart of what we do. We host multiple blood drives each year, partnering with local organizations through community partnerships advocacy to help increase the blood supply for sickle cell patients, who often require frequent transfusions. These drives are essential to saving lives, especially for patients who need rare blood matches.
We also organize health and wellness programs, including health fairs and wellness events that provide free screenings, healthcare information, and expert-led education sessions. Our events often feature speakers from medical institutions and pharmaceutical leaders sharing the latest advancements in treatment and care, further enhancing our awareness and education initiatives.
In addition, we provide guidance on nutrition and wellness, helping sickle cell patients and their families understand the importance of diet, hydration, and preventive care. Printed wellness resources are available at events, and we often invite guest speakers to offer tips and tools that support healthier daily living.
We are currently working toward the development of a dedicated Sickle Cell Wellness Center, which will serve as a supportive hub for education, wellness services, and community programs — all in one place, reinforcing our commitment to sickle cell disease support.
Support Services for Families
At Janiyah’s Love, we believe no one should face sickle cell disease alone. That’s why we offer referrals to trusted medical professionals and specialists, ensuring patients and families get the care they need through our health and wellness programs. Whether it’s finding a hematologist, genetic counselor, or primary care provider, we help connect families to the right support. We also focus on awareness and education initiatives that empower families with essential knowledge about sickle cell disease.
In addition to our medical referrals, we provide counseling and peer support, offering a listening ear and guidance from those who understand the journey. Our counseling services are designed to address emotional, mental, and practical challenges families may encounter while caring for someone with sickle cell. Through community partnerships advocacy, we strive to unite resources and support networks that enhance the lives of those affected by this condition.
Every service we offer is rooted in compassion. Our goal is to bring comfort, clarity, and community to every individual affected by sickle cell disease.
Community Partnerships & Advocacy
We know that lasting change happens when we work together. That’s why we actively build community partnerships advocacy with schools, colleges, healthcare providers, and other organizations to strengthen our outreach and impact. From co-hosting blood drives with universities to collaborating with nonprofit allies and churches, we believe in the power of collective effort.
Local vendors and businesses also play an important role in our events — bringing services, food, and fun to the community while supporting health and wellness programs that make a meaningful difference. These collaborations help us expand our reach and bring more people into the conversation around sickle cell disease support and awareness and education initiatives.
Our advocacy work also includes public speaking, media outreach, and sharing stories that shine a light on the sickle cell experience. Through these efforts, we aim to influence better care, increase research funding, and give sickle cell warriors the voice and visibility they deserve.
our partners
Support the Fight Against Sickle Cell
Your donation helps us provide education, support, and life-saving resources to individuals and families affected by sickle cell disease. Every gift makes a difference — thank you for sharing Janiyah’s love.